National MS Education and Awareness Month: Educate Yourself To Make an Impact
Multiple sclerosis (MS) affects millions of people worldwide, presenting challenges that not only impact physical health but also mental health and well-being. MS Education and Awareness Month is a vital opportunity to spread awareness about the condition and support those living with MS. Below, learn the basics of MS, discover how the condition affects those diagnosed, and identify ways to improve outcomes for those with this challenging diagnosis.
What is National MS Education and Awareness Month?
National MS Education and Awareness Month (NMSEAM), or Multiple Sclerosis Awareness Month, takes place every March and is dedicated to increasing awareness about multiple sclerosis (MS) and educating the public about its impact. Observed annually since 2003, NMSEAM is sponsored by MS Focus: The Multiple Sclerosis Foundation and other non-profit MS organizations, public health authorities, and affiliated groups, such as the National MS Society, which offers national MS education programs and free resources. You can also find awareness kits to start your own celebration.
This month encourages people to learn more about MS, dispel common misconceptions, and support those living with the condition. Participating organizations work year-round to promote research, advocacy, and community support initiatives to improve the lives of individuals with MS, making March a pivotal time for fundraising and mobilization efforts.
Understanding multiple sclerosis (MS): The basics
Multiple sclerosis is a chronic disease that affects the central nervous system, causing a range of symptoms that vary from person to person. The immune system mistakenly attacks the protective myelin coating around nerve fibers, disrupting communication between the brain and the rest of the body. This process can lead to symptoms such as fatigue, mobility issues, balance issues, vision problems, numbness, and cognitive changes. Over time, MS causes nerve damage that can result in long-term disability.
There are four types of MS to be aware of, each with distinct characteristics and progression patterns. Understanding these types provides insight into how MS develops and impacts individuals differently:
- Relapsing-Remitting MS (RRMS): The most common form of MS, characterized by episodes of new or worsening symptoms (relapses) followed by periods of recovery (remission), during which symptoms partially or fully improve
- Primary Progressive MS (PPMS): A steady worsening of symptoms from the onset, with no distinct relapses or remissions, though there may be temporary plateaus or minor improvements
- Secondary Progressive MS (SPMS): Initially a phase of relapsing-remitting MS that eventually transitions into a more progressive form, with symptoms worsening steadily over time, with or without occasional relapses
- Clinically Isolated Syndrome (CIS): A single episode of neurological symptoms caused by inflammation or damage to myelin, which may or may not progress to MS
What is it like to live with MS?
Although MS symptoms can interfere with daily life, many individuals adapt well by developing new routines and adjusting their lifestyles. Advances in medicine have introduced new treatments that can reduce symptoms and slow the disease’s progression. At the same time, accessibility laws, regulations, and cultural shifts have created more accessible spaces for those with physical limitations. As such, people with MS can often live happy, fulfilling lives with their family members and loved ones.
There may not be a one-size-fits-all experience of MS — a person’s journey with MS can vary depending on the type of MS, the stage of its progression, and the nature and severity of their symptoms. Multiple sclerosis affects everyone differently, depending on the location and extent of nerve damage in the central nervous system.
MS symptoms and management
Multiple sclerosis (MS) can cause a wide range of symptoms, each of which can be managed in different ways:
- Fatigue: As one of the most common symptoms, fatigue can be managed through energy conservation techniques, regular exercise, sleep management strategies, and certain medications.
- Mobility issues: People with muscle weakness, balance problems, or difficulty walking may benefit from physical therapy, targeted exercise programs, or assistive devices such as canes and walkers. Medications may also improve mobility symptoms.
- Vision problems: Blurred vision, double vision, or eye pain are often treated with steroid therapies for flare-ups, eye patches, and accessibility accommodations.
- Numbness or tingling: Sensations in the face, limbs, or other areas may be managed with nerve pain medications. Gentle exercises, stretching, and light physical activity can also help.
- Cognitive changes: Issues with memory, focus, or problem-solving can improve with medication, cognitive rehabilitation, and using tools like planners or reminders.
- Muscle spasms and stiffness: Stretching routines, massage therapy, yoga, and certain medications may ease these symptoms.
- Bladder and bowel issues: Urgency, incontinence, or constipation can be managed with pelvic floor therapy, medications, dietary changes, incontinence products, and scheduled bathroom routines.
- Emotional changes: Symptoms like depression, anxiety, or mood swings can benefit from counseling, stress management techniques, support groups, and medications like antidepressants.
The BetterHelp platform is not intended to provide any information regarding which medication or medical treatment may be appropriate for you. The content provides generalized information that is not specific to one individual. Do not take any action without consulting a qualified medical professional.
MS truths and misconceptions
Multiple sclerosis is often misunderstood, leading to myths and misconceptions that can create unnecessary fear or stigma. Below, look at some common misconceptions about MS and the truths behind them.
Misconception: People with MS can’t live active or full lives
While MS may create new challenges in a person’s life, people with the disease are often able to adjust well to their new circumstances and lead active, fulfilling lives. Comprehensive treatment plans that involve a combination of medications, therapies, and symptom management strategies can help reduce symptoms, improve quality of life, and slow disease progression.
A strong support system and workplace and lifestyle accommodations can allow people with MS to continue working, pursue their passions, and maintain meaningful relationships at every stage of the disease’s progression. People with MS can live with resilience, independence, and optimism by focusing on what they can control and accessing available resources.
Misconception: MS always leads to disability
While multiple sclerosis (MS) can cause physical challenges, symptoms do not always lead to significant disability. MS affects individuals differently, and with advances in treatment, many people are able to manage their symptoms effectively and preserve their quality of life well into their later years.
Disease-modifying therapies (DMTs) can slow the progression of MS. These medications can limit the development of new lesions in the central nervous system, minimizing the disease’s impact on daily life. Even in cases where MS may cause some disability, ongoing therapies, rehabilitation, and assistive devices can help individuals adapt and maintain independence and quality of life.
Misconception: MS is the same for everyone
MS can look different for different people depending on their unique symptoms and the type of MS they have. Symptoms can vary significantly between individuals depending on the nerve pathways the disease affects—some may experience more mobility issues, for instance, while others struggle more with cognitive changes.
The type or stage can also influence the severity and frequency of symptoms: People with relapsing-remitting MS experience cycles of symptom improvement and relapse, while those with a progressive form experience a steady worsening of symptoms over time without periods of recovery.
How you can help those with multiple sclerosis
Your support can make a meaningful difference to those affected by multiple sclerosis. During MS Education and Awareness Month or World MS Day for MS, focus on how to educate yourself, raise awareness in your community, and offer practical or emotional support to those living with MS.
Educate yourself
Learning about MS is the first step in providing meaningful support. Understand what MS is, its symptoms, and how it impacts people differently. Familiarizing yourself with the condition can help you remain aware of MS and offer support and advocacy when requested.
Advocate for accessibility in your community
Consider how the built environment in your community might impact a person living with MS. You may notice areas for improvement, such as where well-designed public transit or disability-friendly pathways might make life easier. Advocating for inclusive, accessible spaces can help ensure that individuals with MS and other disabilities can navigate their communities safely and comfortably.
Offer practical assistance
If you know someone with MS, offering practical support may be especially meaningful. Consider offering to run errands, take them to appointments, or help with shopping or household chores. These types of gestures can make a material difference to someone with MS.
Participate in awareness campaigns
Getting involved in MS awareness campaigns and raising awareness can amplify support for those with the condition. Join events like MS walks, fundraisers, or online advocacy efforts. Sharing resources and stories helps raise awareness, promote research, and foster a community that values compassion and understanding for individuals with MS.
Online mental health support for those living with MS
Living with multiple sclerosis can take a toll on mental health. Those with the disease often experience depression, anxiety, and stress, particularly early in the diagnosis or during periods of symptom progression. With therapy, however, many people with MS can be resilient to the challenges of living with the disease. Research indicates that cognitive-behavioral therapy can help individuals with MS manage depression, reduce anxiety, and develop effective coping strategies for dealing with the challenges of the disease.
If you can’t access in-person therapy due to accessibility challenges, you might also consider online therapy through a platform like BetterHelp. An online platform lets you connect with a licensed mental health professional and attend convenient online therapy sessions. Online therapy is just as effective as in-person sessions and is especially helpful for those with mobility issues or other symptoms that make in-person appointments challenging. In addition, you can attend therapy from home and schedule sessions at a time that works for you.
Takeaway
National MS Education and Awareness Month is an opportunity to learn, engage, and meaningfully impact the lives of those affected by multiple sclerosis. Educating yourself about the condition, dispelling misconceptions, and supporting awareness efforts can help foster understanding, promote accessibility, and contribute to a more inclusive and supportive world for individuals living with MS.
Frequently asked questions
Below are some of the most frequently asked questions about MS.
What is the color for MS Education and Awareness Month?
Orange is the color for MS Education and Awareness Month, symbolizing energy, strength, and hope for those affected by multiple sclerosis.
What is the symbol for MS awareness?
There are two symbols for MS awareness: the orange ribbon and the butterfly. The orange ribbon represents unity, strength, and the ongoing fight to raise awareness and find a cure for multiple sclerosis. The butterfly symbolizes transformation, hope, and resilience, reflecting the strength and adaptability of those living with MS as they navigate the challenges of the condition. Both symbols inspire support and understanding during MS Education and Awareness Month.
How does MS affect the central nervous system?
MS affects the central nervous system by damaging the myelin sheath, the protective coating around nerve fibers. This damage disrupts the flow of electrical signals between the brain, spinal cord, and the rest of the body, leading to symptoms like fatigue, mobility issues, numbness, and cognitive challenges. Over time, this damage can result in lasting nerve deterioration and disability.
How does MS affect mental health?
MS can significantly affect mental health due to both the physical and emotional challenges of the condition. Many people with MS experience depression, anxiety, and stress related to their condition. The unpredictability of symptoms, fear of progression, and changes in brain function can contribute to these struggles. Mental health support, like therapy or counseling, can help individuals cope with the day-to-day challenges of living with MS.
What is special about MS?
According to the Multiple Sclerosis Foundation, multiple sclerosis is unique because it is an unpredictable condition that can cause unique symptoms for people living with it. The condition causes changes in the central nervous system, including parts of the body like the optic nerves and spine. Each person with MS is unique, so no two people may have the exact same symptoms or severity. This unpredictability is unique to MS and some other genetic or progressive conditions, such as ALS.
Why is MS a disability?
MS can be considered a disability for some people, especially if symptoms worsen over time. MS can be painful, difficult to cope with, and confusing. People may require many medical appointments and might use assistive technology or medical devices, like a wheelchair. They may struggle to work or leave home in the ways others do. If a condition causes significant impairment in one or more major functioning areas in life, it is generally considered a disability.
What is the significance of MS?
MS is significant because it can come with unique health risks and is often different for each person with the condition because of how it spreads. Because MS can lead to severe disability or death, the condition is considered serious. If you think you or a loved one have MS, talk to your doctor about diagnostic options.
What is the red flag for MS?
Some red flags that may indicate a more severe form of MS can include the following:
- Abrupt onset
- Early onset before age 10
- Late onset after age 50
- Hiccups that don’t stop
How can you support someone with MS?
You can support someone with MS by asking them what they need from you, how you can help, and what makes them feel seen. Each person with MS may have unique needs, so asking may be better than assuming. In addition, don’t touch someone’s mobility equipment, like their wheelchair, without their permission. If someone is using equipment for accessibility, that equipment should be considered part of their body and requires consent to touch or use.
How can you tell if someone has MS?
You can’t tell by looking at someone if they are diagnosed with MS or could have the condition. Only an MRI and spinal tap test can diagnose MS for sure. Talk to a doctor if you believe you or a dependent has MS.
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